 Timeline |
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| 2004 |
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Born in Chester United Kingdom on January 30, 2004. 9.18 am weighing 7lb 3oz |
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| Sat 31 january 2004 |
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Ready to go home, all packed when the paediatrician carried out his discharge checks. Aaron has a "heart murmur". within 1 hour Aaron is taken to special care and has a full heart scan. this scan revealed a major heart defect. he has two holes in the heart (complete AVSD) and mitral valve regurgitation. He is admitted to SCBU until his apt with Alder Hey. |
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| Tues 3 Feb 2004 |
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Apt with Dr Kitchener cardio consultant Alder Hey. Confirms initial diagnosis. it is agreed we can take Aaron home, Dr Kitchener will see Aaron every month to check on his progress. We then had to wait 8 hours for an ambulance to return us to Countess of Chester hospital! 9.45 pm before we get back to Chester, we are advised to leave Aaron at Chester, and take him home tomorrow. we are devestated that we've got to wait another day before we can bring our baby home. |
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| Wed 4 Feb 2004 |
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AARON FINALLY COMES HOME WITH US! HURRAY!!!! |
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| 25 Feb 2004 |
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Daddy's birthday! |
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| Sun 29 Feb 2004 |
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Aaron's christening. We had a lovely day. Aunty Jen & Uncle Tony were Godparents. After the church service we went for a lovely Sunday Lunch. |
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| Tues 2 March 2004 |
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Aaron admitted to Alder Hey to start medication to support his heart.. |
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| 5 March 2004 |
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Mummy's birthday - spent the day with Aaron in Alder Hey. nanny & grandad brought us a lovely chocolate cake to celebrate. |
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| 17 March 2004 |
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Aaron admitted to Countess of Chester (coch) - bronchial virus. |
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| mother's day |
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spent with Aaron in COCH |
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| 26 April 2004 |
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Aaron admitted to Alder Hey (AH) for PEG (feeding tube) to be fitted into his tummy in order for us to feed him more successfully. |
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| 30 April 2004 |
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Admitted to AH - dehydration |
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| Easter |
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Aaron in hospital for the whole of Easter weekend. He gets his first easter egg from his community nurse. Mummy and daddy enjoy helping him eat his egg! |
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| 13 May 2004 |
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Catheter operation on heart to check pressures within heart prior to planning open heart surgery. Grandad buys Aaron his first football kit for being a brave boy during his operation.
The LFC kit has "Aaron 1" printed on the back. |
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| sun 24 Oct 2004 |
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Aaron went into heart failure and was taken to COCH where he was sent by ambulance to Manchester Children's hospital ICU. |
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| sun 31 Oct 2004 |
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Aaron taken off the ventilator. Transfered back to COCH. |
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| fri 5 Nov 2004 |
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Aaron discharged from COCH - allowed to come home again. |
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| tues 9 Nov 2004 |
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Mummy and Daddy go for 12 week scan for Aaron's baby brother or sisiter. Aaron has some special time with nanny and grandad.
5.15 pm Aaron goes into heart failure again. Taken to COCH. Transfered to AH ICU |
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| 13 Nov 2004 |
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operation to fit broviac central line |
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| 19 Nov 2004 |
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emergency bowel surgery!
heart operation now delayed by at least 2 weeks. |
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| 2 Dec 2004 |
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heart operation - open heart surgery to repair AVSD. Surgeon confident mitral valve repair is a success. The longest 5 hours of our life. awaiting news of Aaron's safe return to ICU.
Great relief when we can see him again. |
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| 21 Dec 2004 |
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Aaron has cardic arrest and needs to be resusitated. very scary and frightening watch the doctors work on him. |
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| 22 Dec 2004 |
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Aaron goes into multiple organ failure. we are advised by two ICU consultants that Aaron is now critical and we need to prepare ourselves for the machines to be switched off.
The hardest phones call we have had to make to advise family of current devastating situation. |
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| 23 dec 2004 |
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LFC football players visit the hospital. They come up to ICU and spend time with all the patients and families.
They sign Aaron's football kit and have photos taken with him.
our prayers have been answered and we have a miracle - Aaron has made a drastic improvement. His heart operation will take place tomorrow.
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| 24 Dec 2004 |
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we are told that Aaron has a 25% chance of surviving this second heart operation. He needs to have open heart surgery to replace his mitral valve with a man-made valve.
7 hours of pure hell, pacing the floor waiting for news. At last good news Aaron back on ICU and the surgery was a complete success and very straight forward.
Aaron wide awake tonight - listening to the carol singers as they visit the ward.
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| 25 Dec 2004 CHRISTMAS DAY |
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Aaron wide awake - smiling and helping unwrap all his presents Father Christmas has delivered.
It is the best possible Christmas we could have hoped for. It really made us realise that the importance of Christmas is spending time with people you love and cherish and not running round buying pointless gifts, and over eating and drinking. |
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| 29 Dec 2004 |
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Aaron taken off the ventilator today - 1st time since he was put on 9/11/04
Major step forward today. a ray of hope for Aaron coming home before his 1st birthday. |
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| 31 Dec 2004 NEW YEARS EVE |
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Aaron was moved off ICU today and transfered to HIgh Dependency (HDU). another postive step on the road of recovery.
We are nearly at the door home! |
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| 5 Jan 2005 |
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Aaron deteriorated drastically and is transfered back to ICU. He is now back on the ventilator.
A real set back and totally devastating for us. We really thought we were on our way home. |
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| 6 Jan 2005 |
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Aaron diagnosed with RSV - a broncial infection. He has to go into an isolation cubicle because RSV is highly contagious. |
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| 11 Jan 2005 |
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Operation within the isolation cubicle to remove infected tissue from Aaron's heart operation scars.
Aaron now on a very fierce ventilator and there is negotiations with Great Ormond Street as to whether Aaron is to be transfered to GOSH for treatment.
We struggle to understand this. Aaron is so poorly he can not be moved to have his bed cahnged - how will he survive transfer to GOSH?
GOSH decide Aaron is too poorly and will not survive the transfer, therefore he is to remain in AH. |
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| 15 Jan 2005 |
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After a very distressing and stressful, sleepless night, Aaron's consultant tells us that Aaron has died and it is only the machines working for him now. we have to agree to the consultant taking Aaron off the life support machine.
Mummy holds Aaron as the machines are disconected. Aaron died at 9.18 am - exactly the same time as he was born! |
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| 19 Jan 2005 |
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Mummy & Dady go for 20 week scan for new baby _ its another little boy! |
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| 25 Jan 2005 |
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Aaron finally comes home - on the day of his funeral |
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| 30 Jan 2005 |
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Aaron's 1st birthday. Aunty Jane and Uncle Pete, Abby & Harry buy a yellow rose to plant in the garden as a memorial. |
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